{"id":8850,"date":"2010-08-11T13:26:42","date_gmt":"2010-08-11T20:26:42","guid":{"rendered":"http:\/\/moviesharkdeblore.com\/site\/?p=8850"},"modified":"2014-10-23T15:32:30","modified_gmt":"2014-10-23T22:32:30","slug":"extraordinary-measures","status":"publish","type":"post","link":"https:\/\/behindthelensonline.net\/site\/reviews\/extraordinary-measures\/","title":{"rendered":"EXTRAORDINARY MEASURES"},"content":{"rendered":"

By: debbie lynn elias<\/strong><\/p>\n

\"extraordinarymeasuresposter\"<\/p>\n

Pompe Disease.\u00a0 How many of you have heard of it?\u00a0 I hadn\u2019t.\u00a0 But thanks to Harrison Ford, who was inspired by an article written by Pulitzer Prize-winning author, Geeta Anand, and then later her book entitled \u201cThe Cure: How a Father Raised $100 Million and Bucked the Medical Establishment – in a Quest to Save His Children\u201d, what has long been described as an \u201corphan disease\u201d is now brought to the forefront with this emotional and moving story of the John Crowley family in EXTRAORDINARY MEASURES.\u00a0 Executive produced by Ford (who also stars) and Nan Morales along with his long time partners, Michael Shamberg, Stacey Sher and Carla Santos Shamberg, and calling on the talents of Brendan Fraser, Keri Russell and\u00a0 irrepressible newcomer Meredith Droeger, EXTRAORDINARY MEASURES is a film that champions perseverance, tenacity, personal courage, humanity, science, a belief in miracles and above all, hope.<\/p>\n

For a little education, Pompe disease is an inherited disorder caused by the buildup of a complex sugar called glycogen in the body’s cells. As the glycogen accumulates in certain tissues, it impairs their ability to ability to function normally, leading to progressive muscular degeneration, enlarged heart, enlarged liver, heart failure and premature death.\u00a0 Various types of Pompe, one is infantile onset that begins within a few months of birth and for years recognized that death would come within 2 or 3 years, while others are known as late onset with symptoms not appearing until childhood, adolescence or even adulthood.\u00a0 The name, Pompe Disease, comes from Dutch pathologist J.C. Pompe, who first described a 7-month-old infant who died suddenly from the disease in 1932.\u00a0 Given this knowledge, it\u2019s to see why Ford wanted to bring John Crowley\u2019s story to the big screen.<\/p>\n

\"2010-01-21_231725\"<\/p>\n

John and Aileen Crowley are your average upper middle class couple.\u00a0 Happily married they live in an affluent suburban neighborhood in a beautiful home with their three wonderful children. John, an executive with a drug manufacturer, makes a nice living and has a superb health insurance plan, one that pays the bulk of the family\u2019s medical bills for the 24-hour care needed by two of the Crowleys three children.\u00a0 Both Mehan and Patrick are afflicted with Pompe Disease.\u00a0 Confined to wheelchairs and relying on respirators, both children have already surpassed the survival odds, with Megan turning 8.\u00a0 Unfortunately, the doctors have told John and Aileen that she won\u2019t live past 9.\u00a0 With the clock ticking for his beautiful little girl, John Crowley becomes a man with a mission.<\/p>\n

Pompe Disease is an \u201corphan disease\u201d, so named as the result of the Orphan Drug Act of 1983, an Act designed to encourage the development of drugs that have a smaller market\u00a0 due to their treatment of \u201corphan diseases\u201d, diseases that affect less than 200,000 persons in the U.S. or that affect more than 200,000 but for which there is no feasibility of profit given the expense of research, testing and limited use.\u00a0 However, the market potential for an \u201corphan drug\u201d can also be enormous considering the high cost of drugs per patient and that insurance will generally pay this cost.\u00a0 Thus, no one is even looking for a cure or treatment, no one except a handful of scientists\u00a0\u00a0\u00a0 Not acceptable to John Crowley.\u00a0 Somewhere, somehow, there must be a way to save his children.\"2010-01-21_231745\"<\/p>\n

As John digs into global research and treatments for Pompe, one name tops the list above all others – Robert Stonehill.\u00a0 Ahead of his time, his science is \u201clight years\u201d ahead of others.\u00a0 Unfortunately, he has no funding and his research works only in theory and as Stonehill himself puts it, \u201cI\u2019m a scientist.\u00a0 I don\u2019t deal with people.\u201d\u00a0 As resolute as John Crowley is to help his children, that same resolve and obsession permeates Robert Stonehill, making them perfect counter-parts.\u00a0\u00a0 Joining forces, Crowley and Stonehill forge ahead to develop Stonehill\u2019s theories.\u00a0 Calling on Crowley\u2019s expertise in business and Stonehill\u2019s expertise in science, the two become an unstoppable force.<\/p>\n

Stretching their acting wings, the performances by Harrison Ford and Brendan Fraser are a compilation of the Little Engine That Could.\u00a0 As Robert Stonehill, Ford first struck me off guard and I was unsure of his performance, but the more I watched, the more involved I was with Stonehill.\u00a0 Ford really went lengths to create the eccentric traits and habits of a scientific genius. When I stopped to think about many of the researchers I personally know, he nailed their personas dead on, establishing the fact he is not a “people person” but while \u201ca medical doctor, [he] doesn\u2019t see patients.\u00a0 His interest in the disease is on a cellular level, an intellectual puzzle for him.\u201d\u00a0\"2010-01-21_231758\"<\/p>\n

Although he met with the\u00a0 real Crowley children, Ford was \u201clooking for the reality of the character [of Stonehill] as opposed to studying how Pompe affects the individual and the family.\u00a0 \u201cI went to the University of Nebraska.\u00a0 I visited other scientists that John [Crowley] led us to via a medical company that he now runs.\u00a0\u00a0 [I] spent my research time working with scientists to figure out how to get science which is something you practice in your head, out onto the screen.\u00a0 Figure out ways that we could accomplish the description of the science in a way that wouldn\u2019t slow the movie down. . . We phrased out what was necessary in a way that I was very happy with.\u201d\u00a0\u00a0 All of his homework paid off in spades making Stonehill a more than intriguing character study.\u00a0\u00a0\u00a0 Some of the highlights of Ford’s work include scenes where he is enraged and screaming, his initial scene with Meredith Droeger (which is beyond charming) and a final scene in the hospital.\u00a0 Brilliantly played.\u00a0\u00a0 Interestingly, Stonehill is not an actual player in the Crowley saga.\u00a0 Stonehill is a compilation of 4 or 5 actual scientific researchers involved in the development of a treatment for Pompe, not the least of which is Dr. Hung Do, the doctor with whom John Crowley himself has worked with from early on.<\/p>\n

\"2010-01-21_231811\"<\/p>\n

As keenly played as Ford\u2019s scientific obsession is, equal is the obsessive drive Fraser brings to John Crowley.\u00a0 While at times Fraser seems uncomfortable in Crowley\u2019s skin, during family scenes with Keri Russell and the children, his eyes and face are luminous with joy and love.\u00a0 Spending time with the Crowley family, Fraser had met John before meeting Megan and Patrick at the screening of Fraser\u2019s film \u201cInkheart\u201d.\u00a0 \u201cI didn\u2019t have an appreciation for truly how fragile they are.\u00a0 They are on life support systems.\u00a0 They are in chairs.\u00a0 There are respiration units.\u00a0 Pompe is degenerative disease that causes the muscles to atrophy and organs enlarge, the heart in particular.\u00a0 But the one thing it does not affect is certainly the mind. \u201c For Fraser, just listening to him tell anecdotes about Megan Crowley, you see his face light up and his voice brim with an almost paternal pride.\u00a0\u00a0 His amazement with the indomitable spirit of these children and this family is evident and it carries over into his performance.<\/p>\n

A solid player is Keri Russell who has really fallen into the maternal role with her recent performance in “Bedtime Story” and now EXTRAORDINARY MEASURES. As Aileen Crowley, she brings a normalcy to family life.\u00a0 But the most indelible work comes from newcomer Meredith Droeger.\u00a0 As Megan Crowley, she is incredible. A whirlwind force to be reckoned with, Meredith is a face to watch in the future!!!! And to see her go toe-to-toe with Harrison Ford – priceless.\u00a0 I absolutely love her.\"2010-01-21_231825\"<\/p>\n

Written by Robert Stanley Jacobs and directed by Tom Vaughn, adapting the Crowleys\u2019 story was anything if not challenging.\u00a0 Compressing a multi-year process into the space of 100 minutes, for Jacobs,\u00a0 \u201cit\u2019s always tricky when you do a true story because you have a 350 page book, very well researched and complete, that when translated would be a 14 hour film.\u00a0 We had to really pick out what are the emotional sentiments that we wanted to capture.\u201d\u00a0 The passage of time is seamless and believable, although I felt some holes in the time line and story in one or two instances associated with Crowley’s travels back and forth from Nebraska to then Seattle and Nebraska. One has to pay attention to follow the jumps.<\/p>\n

A key element to this film is the science aspect which was of the utmost important to Ford.\u00a0 \u201cWe gave the audience credit for some intelligence and didn\u2019t sit \u2018em down to give them a lecture.\u201d\u00a0\u00a0 Thanks to consultation with researchers and doctors, the science relayed in EXTRAORDINARY MEASURES is credible and accurate.\u00a0 A large part of the science depicted is attributable to the creation of Stonehill, a compilation of several real life researchers and doctors.\u00a0 According to Vaughn, \u201cWe knew that we were developing this character for Harrison.\u00a0 We all worked together on developing the character. Partly led by what would be entertaining, what would be a fun character.\u00a0 What elements from those other researchers we could bring together to make him jump out of the story…and show in that world of research scientists.\u201d\u00a0\u00a0\u00a0 For Jacobs, he first \u201chad to identify the emotional sentiments of John [Crowley] and then create a composite character for Dr. Stonehill which will allow us to express all those points of the journey through a symbiotic relationship between John and Dr. Stonehill.\u201d\u00a0\u00a0\"2010-01-21_231839\"<\/p>\n

Set design is outstanding with the creation of the laboratories and particularly notable is the use of various lighting modes in different areas of the buildings.\u00a0\u00a0 Production Designer Derek Hill and Set Decorator Densie Pizzini worked closely with the folks at the 177 acre Nike World Campus in Beaverton which served as the cold, sterile research facilities of the corporate drug world.\u00a0 Medical equipment abounds in this film, and all was shipped in from manufacturers and vendors across the country to retain authenticity.\u00a0 Oregon Health and Science University, a center for Pompe treatment, also plays a significant part in the film as not only does it provide a hospital setting, but OSHU doctors served as consultants and participated in shooting several scenes.\u00a0\"2010-01-21_231906\"<\/p>\n

One always hears about families that try to make a difference with disease treatment when they are personally affected, generally in the form of asking Congress or other agencies for assistance or better help, but to actually see one man, one family, make something happen and come to fruition is beyond encouraging.\u00a0\u00a0\u00a0 While the Crowley children are depicted in the film as being in mid-childhood, in reality, Megan Crowley was diagnosed at 15 months old with Pompe.\u00a0 A few months later, John and Aileen were told newborn Patrick was also afflicted and that both children \u201cwouldn\u2019t live to be 2.\u201d\u00a0 Facing the worst nightmare of any parent and knowing they wanted their children to live, John and Aileen made a conscious decision to actively do whatever they could to help save their childrens\u2019 lives.\u00a0\u00a0\u00a0 According to Ford, \u201cJohn is still doing research and the benefits of his research are now available.\u00a0 The enzyme therapy that we talk about developing in the film, now when administered to infants, a lot of them grow up with pretty normal lives. \u201c\u00a0 As of the release of EXTRAORDINARY MEASURES, Megan Crowley is now 12 years old and Patrick Crowley is eleven.\"2010-01-21_231937\"<\/p>\n

Do not be turned away by the scientific aspects of this film.\u00a0 Embrace them.\u00a0 Embrace the significance of John Crowley, scientists like the fictional Dr. Stonehill, and the way corporate greed hinders medical care in this country. EXTRAORDINARY MEASURES is an extraordinary story about some extraordinary people.\u00a0\u00a0 An intelligent film that shoots an IV of humanity straight\u00a0 into your heart.<\/p>\n

Robert Stonehill – Harrison Ford<\/p>\n

John Crowley – Brendan Fraser<\/p>\n

Aileen Crowley – Keri Russell<\/p>\n

Megan Crowley – Meredith Droeger<\/p>\n

Directed by Tom Vaughn.\u00a0 Written by Robert Stanley Jacobs inspired by Geeta Anand\u2019s 2006 book, \u201cThe Cure: How a Father Raised $100 Million \u2013 and Bucked the Medical Establishment\u00a0 -In a Quest to Save His Children.\u201d<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"

By: debbie lynn elias Pompe Disease.\u00a0 How many of you have heard of it?\u00a0 I hadn\u2019t.\u00a0 But thanks to Harrison Ford, who was inspired by an article written by Pulitzer Prize-winning author, Geeta Anand, and then later her book entitled \u201cThe Cure: How a Father Raised $100 Million and Bucked the Medical Establishment – in […]<\/p>\n","protected":false},"author":2,"featured_media":8860,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[36,9],"tags":[1265],"class_list":["post-8850","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-movies","category-reviews","tag-extraordinary-measures"],"yoast_head":"\nEXTRAORDINARY MEASURES - Behind The Lens Online<\/title>\n<meta name=\"description\" content=\"Behind the Lens is your home for in-depth movie reviews, filmmaker & celebrity interviews, and more, all by industry professional and film critic debbie lynn elias...\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/behindthelensonline.net\/site\/reviews\/extraordinary-measures\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"EXTRAORDINARY MEASURES\" \/>\n<meta property=\"og:description\" content=\"Behind the Lens is your home for in-depth movie reviews, filmmaker & celebrity interviews, and more, all by industry professional and film critic debbie lynn elias...\" \/>\n<meta property=\"og:url\" content=\"https:\/\/behindthelensonline.net\/site\/reviews\/extraordinary-measures\/\" \/>\n<meta property=\"og:site_name\" content=\"Behind The Lens Online\" \/>\n<meta property=\"article:published_time\" content=\"2010-08-11T20:26:42+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2014-10-23T22:32:30+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/behindthelensonline.net\/site\/wp-content\/uploads\/2010\/08\/2010-01-21_231937.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"465\" \/>\n\t<meta property=\"og:image:height\" content=\"399\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"debbie lynn elias\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"debbie lynn elias\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"10 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/behindthelensonline.net\\\/site\\\/reviews\\\/extraordinary-measures\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/behindthelensonline.net\\\/site\\\/reviews\\\/extraordinary-measures\\\/\"},\"author\":{\"name\":\"debbie lynn elias\",\"@id\":\"https:\\\/\\\/behindthelensonline.net\\\/site\\\/#\\\/schema\\\/person\\\/2d9b602095eb0ce3d363efb75ad0b5d4\"},\"headline\":\"EXTRAORDINARY MEASURES\",\"datePublished\":\"2010-08-11T20:26:42+00:00\",\"dateModified\":\"2014-10-23T22:32:30+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/behindthelensonline.net\\\/site\\\/reviews\\\/extraordinary-measures\\\/\"},\"wordCount\":1996,\"publisher\":{\"@id\":\"https:\\\/\\\/behindthelensonline.net\\\/site\\\/#organization\"},\"image\":{\"@id\":\"https:\\\/\\\/behindthelensonline.net\\\/site\\\/reviews\\\/extraordinary-measures\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/behindthelensonline.net\\\/site\\\/wp-content\\\/uploads\\\/2010\\\/08\\\/2010-01-21_231937.jpg\",\"keywords\":[\"EXTRAORDINARY MEASURES\"],\"articleSection\":[\"Movies\",\"Reviews\"],\"inLanguage\":\"en-US\"},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/behindthelensonline.net\\\/site\\\/reviews\\\/extraordinary-measures\\\/\",\"url\":\"https:\\\/\\\/behindthelensonline.net\\\/site\\\/reviews\\\/extraordinary-measures\\\/\",\"name\":\"EXTRAORDINARY MEASURES - 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